The
day you were diagnosed with autism is a day I will not forget. It
was a lengthy day full of meetings with 3 different doctors each an hour or
more depending on the doctor. I was exhausted by the end and in
complete denial. How in just a few hours could I have your future
ripped from me. I didn't understand what really was happening
through much of the visits, I didn't even know we were there to
consider autism, your primary care physician had put it on his
referral, but I had no idea and hadn’t even been consulted with anyone about autism. If
I had to do it over I would have had dad by my side, for I felt as
though I was falling into a black hole as I sat across the doctors
table and he broke the news to me that his diagnosis for you was autism. I
told him no, but he had done the tests, he had already talked with me
and he could see things that I as your mother refused to see. You
were also exhausted from the days meetings, so to calm you I was
holding you, rubbing your tummy as you stared blankly upward. He
pointed out that even this small ritual we did was in fact part of
your autism. I walked numbly from his office, our last appointment
of the day was over and I felt as though my life was over. I drove the 30 minutes to our home where I would be
teaching dance within the hour, feeling numb, disconnected, and
emotionally drained.
Half
way through the class you came down to see the dancers. You love
music, you connect with it, so you will often come down and listen.
The mother who had brought her dancer for the fist time today
beckoned you over to sit by her. Reluctant at first you sat by
yourself looking at your flash cards. But by the end of the class, and with much persistence on her behalf, you smiled at her, walked
over and showed her your flash cards. When dance class was over I
came to talk with her on how her daughter did, you jumped off the
couch and walked out to the dance floor walking in circles going into
your world of flash cards. The mother and I talked about her
daughter, and when finished she said “your red headed daughter is
so special.” “Thank you” I said, wanting to be done with
class and crawl into a hole and cry myself into oblivion! Yet she wasn't done
talking, so I pretended to be happy. “She wasn't sure if she
wanted to sit with me at first, but she finally did come, she didn't
speak to me at all, but her spirit is so pure.” My eyes filled
with tears, she was right, Malia you are so pure, and sweet, it was then
that she spoke the words that will forever pierce my heart.
“I feel that she and Jesus are the closest of friends. She knows him and I feel that she is one of his most precious spirits.”
“I feel that she and Jesus are the closest of friends. She knows him and I feel that she is one of his most precious spirits.”
I didn't know this
woman, this was the first time I had met her. Yet she was speaking
the words I needed to hear. I informed her of your doctors
appointments today. A precious moment for both of us, Heavenly
Father had sent her to my life at the exact moment I needed to hear
words of comfort. He knows you, he loves you Malia and he is in the
very fabric of our lives! Autism.... an ugly word, a word that nobody wants
to hear their child has, yet God has sent you this way for
a reason, and I know that you are here for us. Thank you Malia, for
sacrificing yourself to help others feel closer to Heavenly Father!
I Love YOU Malia!
Xoxo
-Mom
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